The autism spectrum manifests in a diverse range of behaviors, often misunderstood as "unexpected" in social settings. These behaviors, including self-stimulation like arm-flapping, repetitive vocalizations, and pacing, are not arbitrary. They are crucial mechanisms for managing the intense neurological processing that characterizes autism. Imagine a mind processing information at an accelerated rate, overwhelmed by sensory input. Self-stimulation provides a vital release, a way to regulate an overstimulated nervous system.
Consider this: arm-flapping isn't a random act; it's a physical manifestation of processing overwhelming emotions. Repetitive vocalizations are a release valve for racing thoughts. Pacing allows for the organization of complex internal processes. These are not signs of intellectual deficiency, but rather, evidence of a unique neurological architecture. To assume otherwise is to fundamentally misunderstand the autistic experience. As an autistic individual, I've navigated this complex landscape. My own journey involved learning to manage these tendencies, to find a balance between self-regulation and societal expectations. As a child, public arm-flapping drew harsh, uninformed reactions. This experience is not unique. Many autistic individuals face similar prejudice, stemming from a lack of understanding, not malice. I've witnessed the devastating impact of this ignorance firsthand. In school, classmates with more pronounced autistic traits were subjected to relentless mockery and ridicule. Their behaviors, a direct result of neurological differences, were met with cruelty, not compassion. This cruelty, often rooted in fear and misunderstanding, compounds the challenges autistic people already face. The reality is, autistic people are capable, intelligent and deserving of respect. Their unique neurological wiring offers distinct strengths, perspectives, and contributions. Yet, societal prejudice often overshadows those strengths. We must shift the narrative. Instead of focusing on "fixing" or "normalizing" autistic behaviors, we must cultivate understanding and acceptance. Let us recognize that self-stimulation is not a flaw but a coping mechanism. Let us challenge the outdated notion that difference equates to deficiency. Let us move beyond mere awareness and embrace genuine acceptance, fostering a society where autistic individuals are valued for their unique perspectives and inherent worth. The mockery must end. The embracing must begin. By educating ourselves and fostering empathy, we can create a world where autistic individuals are not only tolerated but celebrated. This is not just a matter of compassion; it's a matter of justice. Let us strive for a future where difference is not a source of shame, but a source of strength. References: www.mayoclinic.org/diseases-conditions/autism-spectrum-disorder/symptoms-causes/syc-20352928
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The portrayal of autism in film and TV has been a mixed bag, ranging from sensitive and authentic depictions to harmful and mocking stereotypes. While progress has been made, there's still a long way to go to ensure accurate and respectful representation. Let's examine some key examples and discuss how we can foster greater understanding and acceptance.
The 1988 film, Rain Man, while a classic, presents a complex case. Dustin Hoffman's portrayal of Raymond, an autistic man with significant support needs, is undeniably powerful. However, the film's narrative, centered around Raymond's brother, Charlie's (Tom Cruise) initial exploitation of Raymond for financial gain, perpetuates harmful stereotypes. Charlie's early treatment of Raymond, marked by mockery and even physical aggression (Charlie grabs Raymond by the back of his neck in a restaurant and refers to his unexpected behavior with the derogatory "r" word), is deeply disturbing. While the film later shows Charlie's growing understanding and acceptance of Raymond (an ending scene involving the decision of Raymond's legal guardianship is particularly touching), those early scenes are difficult to reconcile with a truly positive portrayal. The "kiss" scene, in which Charlie's girlfriend, Susanna, sympathetically kisses Raymond in a casino elevator, in a heartwarming gesture of compassion and understanding, where many others would not show an autistic person that type of understanding in that manner. Rain Man offers a nuanced, if imperfect, depiction of the evolving bond between two brothers, but its initial reliance on harmful stereotypes cannot be ignored. In contrast, The Big Bang Theory, while a popular sitcom, often relies on Sheldon Cooper's (a character widely interpreted as autistic, though never explicitly diagnosed) social challenges as a source of humor, frequently at his expense. The constant barrage of insults, like "crazy," "nuts," and "wackadoodle," directed at Sheldon, reinforces negative stereotypes and undermines the very real struggles faced by autistic individuals. While intended as comedic relief, these jabs contribute to a culture of ridicule and misunderstanding. How can we expect greater acceptance when a mainstream show normalizes such disrespectful language? This kind of "humor" perpetuates stigma and creates a hostile environment for autistic people. A shining example of positive representation, however, can be found in Sesame Street's introduction of Julia, an autistic puppet. Julia's portrayal is remarkably sensitive and authentic, showcasing the diverse ways autism can manifest. Her struggles with communication, sensory sensitivities, and social interaction are presented with empathy and understanding. The show's approach, particularly Big Bird's initial confusion and subsequent acceptance of Julia's differences, provides a valuable lesson in inclusion and kindness. Sesame Street demonstrates how the media can be a powerful tool for education and fostering empathy, paving the way for greater understanding and acceptance of autistic individuals. As far as solutions to address accurate and sensitive autism representation in films and television, if filmmakers and television producers intend to create a program with characters who are autistic, I have some suggestions as a person who is autistic. My first suggestion is that filmmakers and television producers research the autism spectrum through the various advocacy and autism awareness organizations to improve understanding of how autism manifests; that way, the characters are presented and perceived as authentic to how an autistic person would be. My second suggestion is that filmmakers and television producers reach out to and consult autistic people to allow the autistic community to provide insights about what isn't perceived as respectful and what is more respectful within the films and television shows. A third suggestion is to film scenes with the autistic tendencies and behaviors being manifested in various scenarios to allow autistic people to feel empowered and provide a sense of vulnerability that autistic people can unwind with shielding those behaviors, as so many autistic people have done and continue to do. That way, more people who are neurotypical will see what those tendencies look like and will hopefully come to recognize how those tendencies are not as uncomfortable as initially perceived, which could lead to increased social opportunities for autistic people and neurotypicals. These examples highlight the critical importance of accurate and respectful autism representation. Film and television have a profound impact on public perception, and it's crucial that these platforms are used to promote understanding rather than perpetuate harmful stereotypes. As an autistic individual, I know firsthand the challenges of navigating a world that misunderstands and misrepresents our community. Organizations like Anvaya Feats, which empowers individuals with diverse abilities, are vital in amplifying our voices and advocating for change. Let's continue to push for more inclusive and authentic storytelling, one that celebrates neurodiversity and fosters a world where everyone is valued and respected. The future of autism acceptance depends on it. References: www.youtube.com/watch?v=DvyJ93k_AH8 www.youtube.com/watch?v=ZTgHLUGT2ZA www.youtube.com/watch?v=JUwa6ZkHtnY www.youtube.com/watch?v=FJgi-Lou1NA www.youtube.com/watch?v=dKCdV20zLMs www.youtube.com/watch?v=wn-a10Ko_38&list=PL8TioFHubWFtrZ_oqh1uqmijgSPt2ii_0&index=28 Introduction"To be disabled in Nigeria is to be undesirable, unwelcomed, and unaccepted. It’s a lonely, scary, and isolated place." These were the heartbreaking tweets of Mr. Debola Daniel on X (formerly called Twitter). Debola Daniel, the son of a prominent Nigerian politician made this tweet after he was denied entry into a Kentucky Fried Chicken restaurant popularly known as KFC at the Murtala Muhammed International Airport. The reason? Wheelchairs were not allowed into the restaurant's premises. While the Lagos State Government swung into immediate action after the tweets, Debola's encounter was a glaring reminder of the harsh realities persons living with disability face daily in Nigeria. This also begs the question—If a privileged individual could face such blatant discrimination, what about the unheard voices of millions of everyday Nigerians living with disabilities? For a country estimated to have 35.1 million people living with disabilities, Nigeria's built environment has poor accessibility standards. When an environment is inaccessible, it creates barriers to participation and inclusion. An assessment by the World Bank on disability inclusion in Nigeria reveals that persons with disabilities lack access to basic services and that attitudinal barriers represent a major impediment to their socioeconomic inclusion. Government buildings, schools, hospitals, and even businesses operate to serve only one type of Nigerian—the able-bodied ones. This article explores Nigeria’s lack of accessibility standards, and the struggles of Persons with Disabilities (PWDs), and calls for strict enforcement of Nigeria's Discrimination Against Persons With Disabilities Act. Fortunately, non-profit organizations like Anvaya Feats, are passionate about advocating for accessibility and inclusion. This is evident in their mission to empower persons with disabilities and marginalized communities by creating accessible projects, environments, and organizational cultures; and building an international community that challenges stigma. The Lack of Accessibility Standards in NigeriaThe ability for everyone, regardless of disability, to have access, use, and benefit from their environment is accessibility. Accessibility4 ensures that people with disabilities have access to the physical environment, transportation, information, and communications and to other facilities and services that are open or provided to the public, on an equal basis with others. This inclusively empowers people with disabilities to engage fully and equally with others. Accessibility is not charity. It is not an act of kindness. It is a right that ensures everyone can move, work, and live independently regardless of ability. It means ramps where there are stairs, elevators where there are high floors, braille on signs, accessible buses, and digital platforms that serve the visually impaired. The Harsh Reality of Accessibility in NigeriaAccessibility barely exists in Nigeria. Imagine you need to access the second floor of a government office, you arrive and realize there’s no ramp, just a steep flight of stairs. The security guard shrugs when you ask for help. No elevator. No alternative entrance. Just stairs and indifference. This describes the poor state of accessibility in Nigeria. A 2022 Agora Policy report shows that 98.5% of public buildings fail to meet accessibility standards. When it comes to transportation, there are no wheelchair-friendly buses or taxis. Sidewalks? Broken or nonexistent. Bank doors are highly inaccessible for PWDs. Hospitals and schools? Unaccommodating. If you cannot climb stairs, you may as well not enter. Living with a Disability in an Inaccessible EnvironmentSometime in 2020, I got a taste of what it means to live with a disability in Nigeria. A femoral fracture left me wheelchair-bound after surgery. Simple tasks like entering a building or attending classes became overwhelming. Ramps and elevators were nonexistent in public buildings including hospitals, and no one seemed to think that it mattered. My school could not provide an alternative for me to write exams even after knowing my mobility status. For me, it was temporary. For millions of Nigerians, this is life. Schools rarely provide braille materials, sign language interpreters, or assistive devices. Government offices are so inaccessible that wheelchair users must rely on others to carry them in. Workplaces exclude PWDs job seekers by default—less than 1% of PWDs work in the formal sector. And then there’s the stigma. Stories like Debola Daniel’s KFC incident prove that businesses can boldly refuse service to PWDs with little to no consequences. This isn’t just discrimination, it’s a complete exclusion of PWDs from public life. Barriers Faced by Persons with Disabilities in NigeriaPWDs in Nigeria struggle daily with mobility, education, and employment inclusion, made worse by stigma, government neglect, and poor infrastructure.
A Law Without Implementation: Nigerian Discrimination Against Persons With Disabilities ActThe Nigerian Government in 2019 enacted the Discrimination Against Persons with Disabilities (Prohibition) Act, 2018 to protect the rights of persons with disabilities and ensure accessibility in public spaces. The law primarily states that:
Yet, six years later, not so much has changed. Today, Non-governmental organizations (NGOs) are still clamoring for enforcement of this law. Government buildings remain inaccessible. Private businesses continue to exclude PWDs. There is no enforcement, no accountability, and no urgency. What good is a law if it exists only on paper? Nigeria's Progress on Accessibility after the Disability ActDespite the gap between the enactment and implementation of the Discrimination Against Persons with Disabilities Act, of 2018, Nigeria has made some notable strides toward disability inclusion. One major achievement is the establishment of the National Commission for Persons with Disabilities (NCPWD). Though limited by funding and capacity challenges, the commission was created to safeguard the rights of persons with disabilities (PWDs) and ensure compliance with the Act. In governance, the representation and participation of PWDs have gained more attention. There has been an increase in the inclusion of PWDs in political offices at both state and federal levels. Beyond politics, Nigeria has demonstrated its commitment to disability rights through several initiatives. The government established a Presidential Task Force to enforce compliance with disability laws and drive the effective implementation of inclusive policies. The House of Representatives also set up a Disability Inclusion Committee to monitor and support the Disabilities Act. In addition, the Federal Government in 2021 made it mandatory that sign language interpreters be included during major news broadcasts, to ensure better accessibility for the hearing-impaired. While these efforts mark significant progress, Nigeria still has a long way to go. Stronger policy implementation, increased advocacy, and greater investment in disability programs are essential to achieving full inclusion. Successful Accessibility Initiatives in AfricaNigeria can take a leaf from other African countries that have taken practical steps towards breaking the barriers to accessibility. Take Rwanda, for example. In 2019, the Rwandan Government introduced accessible buses to make transportation easier for PWDs. In South Africa and Cape Town City, rapid transit programs were developed through initiatives such as the “Accessible Cities South Africa” and “MyCiTi bus service”. Through these programs, low-floor buses and accessible stations to accommodate PWDs were provided. In Algeria, the National Office for Assistive Devices ensures that persons with disabilities (PWDs) can access essential aids. Public transport systems also have upgraded features like tactile paving and designated seating. Because of Executive Decree No. 06-144 introduced in April 2006, PWDs enjoy reduced fares and free transportation. Lastly, in the eastern flank of South Africa, Eswatini is nailing inclusive education in various ways. First, tertiary institutions in Eswatini accommodate PWDs with open arms. This is in tandem with the country's National Education Policy. Learning institutions across the country also provide an accessible environment. For example, wheelchair ramps instead of staircases and, instead of isolating PWDs, they integrate them with other students. The Eswatini Communications Commission (ESCCOM) donated specialized equipment for visually impaired students to the University of Eswatini to show commitment to PWDs. By adopting similar measures, the Nigerian government can demonstrate a real commitment to disability inclusion. When Disability Meets Other Forms of MarginalizationDisability does not exist in isolation. It intersects with poverty, gender inequality, and rural underdevelopment, making life even harder for certain groups. For women with disabilities, the challenges are even greater. They face both gender discrimination and accessibility barriers, making healthcare, education, and employment even harder to access. Maternal healthcare facilities rarely consider women with mobility challenges, forcing many into unsafe alternatives. In rural areas, where schools and hospitals lack basic accessibility, persons with disabilities are often completely excluded from education and healthcare. Without intervention, many will remain dependent, extending the cycle of poverty and exclusion. A Call For Urgent ActionThe exclusion of PWDs is a human rights issue. If Nigeria is serious about inclusion, action must replace empty promises. Having the law enacted is not enough, there is a need for strict enforcement of the 2018 Disabilities Act. Stronger penalties should also be meted out for institutions that refuse to comply. In addition, construction stakeholders should include accessibility to Nigeria’s National Building Code, and finally; nationwide awareness campaigns should be carried out to dismantle harmful stereotypes. Finally, the role of NGOs and Civil Societies can not be underestimated. Hence, these bodies should not relent in pursuing the implementation of this law until real actions are taken. Above all, PWDs must have a seat at the table when policies that affect them are being made. ConclusionDebola Daniel’s experience at KFC, my struggles, and the countless untold stories of exclusion make one thing clear—Nigeria must do better. Disability does not equate to inability, but inaccessibility does equate to inability and disability. It is necessary to note that accessibility is not optional. It is a right. And until laws are enforced, institutions are held accountable, and mindsets change, millions of Nigerians will remain locked out of opportunities. The time for action is now! About the AuthorPromise Okoro is an accessibility specialist dedicated to creating inclusive digital environment. With expertise in WCAG, universal design principles, assistive technologies, and accessibility compliance standards, Promise works to ensure that products and services are usable by people of all abilities. Connect with him on LinkedIn to learn more about his work in advancing digital inclusion. References
As an autistic man, I've navigated a treacherous path, riddled with both triumphs and the sting of societal indifference. While I've experienced the cruelties of misunderstanding and the deliberate ignorance of my autistic tendencies, I've also had the fortune to access resources that have nurtured my growth into a confident and self-assured individual.
My social experiences, both within and outside the autistic community, have profoundly shaped my understanding of the social world. These experiences have led me to an undeniable truth; society harbors deeply ingrained double standards against autistic individuals, particularly those striving to acquire neurotypical social skills. These double standards demand immediate attention and radical change. Let me illustrate with three glaring examples. Reciprocal Conversations:
Unexpected Behaviors:
Romantic Relationships:
These are just a few examples of the insidious double standards that impede the full inclusion and acceptance of autistic individuals. By raising awareness, challenging societal assumptions, and fostering genuine understanding, we can work towards a more equitable and inclusive society where autistic individuals are valued for their unique perspectives and contributions. The question now is not whether these double standards exist, but rather how we, as a society, choose to address them. Are we content to perpetuate a system that marginalizes and devalues autistic individuals? Or will we choose to dismantle those barriers and create a truly inclusive world for all? The answer lies in our willingness to educate ourselves, challenge our biases, and embrace the richness of neurodiversity. References: www.frontiersin.org/journals/organizational-psychology/articles/10.3389/forgp.2024.1328559/full www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2022.873248/full As a child living on the autism spectrum, I frequently encountered profound misunderstandings in social communication and situational context. Diagnosed in third grade, my early developmental challenges remained unaddressed due to a pervasive lack of education and awareness surrounding autism. This resulted in a childhood marred by mistreatment from peers, teachers and staff.
One vivid memory from first grade (2000-2001) involved a classmate's unkind words. When I responded by calling her a "dummy," the substitute teacher, unaware of the preceding provocation and my autistic difficulties with social filtering, punished me unfairly. In third grade, despite my diagnosis, my teacher demonstrated a profound lack of understanding. Failing to submit an assignment resulted in a "pink slip" - a harsh disciplinary measure for a student with potential difficulties in comprehending due dates. Furthermore, the teacher's aggressive emptying of my desk in front of the class was deeply demeaning and humiliating. Her dismissive response to my mother's concerns ("I was trying to teach him a lesson") further highlighted her lack of sensitivity and understanding of autism's impact on organizational skills. This teacher's mocking of my struggle to tie my shoes, a task complicated by my motor skill challenges, was another instance of insensitive and condescending behavior. While subsequent teachers in fourth and fifth grade were more understanding, social challenges persisted due to ongoing miscommunication and a lack of awareness amongst my peers. Junior high proved to be a particularly difficult period. In sixth grade, I endured relentless teasing from peers who failed to grasp my struggles with sarcasm and humor. This included a physical assault by a classmate who claimed it was "just a joke." The locker room environment was particularly toxic, with constant mockery of my appearance and interests. Teachers, either due to a lack of awareness or a misperception of me as the instigator, failed to intervene. Seventh grade brought further escalation, including the use of derogatory slurs and an insensitive remark from the principal: "If he wasn't flapping, he wouldn't be being teased." This statement, from an educational professional, underscores the alarming lack of autism education within the school system. The subsequent transfer to a specialized school offered little respite. Teachers continued to exhibit insensitive behavior, such as one teacher's degrading comment about my "disgusting" eating habits and another's dismissal of my attempted humor as "wise guy" behavior. The school's approach to my arm-flapping, a common autistic stimming behavior, was particularly problematic. Instead of recognizing its potential sensory-regulatory function, it was treated as misbehavior, leading to demotions within the school's behavior-based level system. This experience instilled a deep-seated self-consciousness regarding my stimming behavior, despite the fact that it is a natural and often necessary form of self-regulation for many autistic individuals. High school brought gradual improvement, but occasional instances of teasing and insensitive remarks from both peers and teachers continued. These experiences have profoundly shaped my understanding of the critical need for increased autism education and awareness. Educators, school administrators, and members of the general public must strive to gain a deeper understanding of the autistic experience, including the challenges faced in social communication, sensory processing, and emotional regulation. While autistic individuals also have a responsibility to develop effective self-advocacy skills, it is crucial to recognize that many of the social challenges faced by autistic individuals stem from a lack of understanding and acceptance within the neurotypical world. By fostering a more inclusive and understanding environment, we can create a world where autistic individuals are not only accepted but celebrated for their unique perspectives and contributions. My journey, fraught with challenges, serves as a testament to the resilience of the human spirit and the importance of continued education and advocacy in promoting a more inclusive and compassionate society. |
AuthorA member of the team and now sharing his lived experience with ASD, Michael J. Westwood is the Lead Blogger at Anvaya Feats! Categories
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