As far as my experiences with living on the autism spectrum and the special interests that come along with being autistic, my first special interest developed as a youth, around the age of six. Special interests in the autism spectrum entail that certain autistic people develop an interest and hobby in one or two areas and become so intensely focused on those hobbies that certain autistic people will dominate social conversations about their hyper-focused interests.
While the neurotypical population may have an interest or hobby that they like and talk about a lot, the difference is that the neurotypical population has enough self-awareness to reciprocate other people's interests, while with the autistic community, autistic people will completely revolve the conversation around their special interests and not reciprocate about other people's interests unless they are prompted to by others. I am an autistic man who developed the self-awareness to learn how to reciprocate other people's interests, so that is less of a social barrier than in my youth, where I would not consider reciprocating and would dominate conversations about my hobbies. I fell into that category when my special interest in the Pokemon franchise began as a six-year-old when I collected the Pokemon training cards, followed by the Pokemon movies, TV series, and video games. I recall going to the local movie theater with my mother around that time to see the "Pokemon 2000" film, where the autistic self-stimulating motor movement of my legs shaking had to be regulated to avoid a commotion in the movie theater. My favorite Pokemon characters were the Pokemon, Pikachu, and the human cartoon who carried Pikachu, Ash. I found the premise of Pokemon to be interesting and engaging at that time, the creatures with supernatural powers who used those powers in combat with each other. I am impressed that the Pokemon franchise has evolved all of these years later and I look back at my special interest in Pokemon fondly. After I grew out of Pokemon, by the age of nine, my special interest transitioned into the hobby that I have retained since the age of nine and I intend on continuing that special interest for the rest of my life. That special interest is the professional wrestling industry, and that interest of mine has a very intriguing story to it. I watched a movie called, "Teen Ninjas: High Noon at Mega Mountain," which happened to feature a professional wrestling star from years ago named Hulk Hogan. My mother mentioned to me that Hulk Hogan was a professional wrestler, and my father had a professional wrestling event from the professional wrestling company, World Wrestling Entertainment (WWE), called WrestleMania V (5), recorded in the 1980s from an HBO airing on a video cassette tape. I watched WrestleMania V on that video cassette, which featured the WWE's top stars of the time, and from there, I became interested in professional wrestling. I was flipping through channels one night and caught WWE's Monday night wrestling program, called RAW, and that date was August 4, 2003, two months before my tenth birthday. I watched that episode of WWE RAW and began watching more regularly from there. My interest in wrestling progressed to watching the WWE programs very often, daily, and I then started collecting the wrestling action figures, along with a play wrestling ring, and would often irritate my family at home by banging the figures in that ring loudly. The WWE presents monthly pay-per-view programs that feature certain wrestlers in high-profile match scenarios, some of those matches are more intense and some are just about a good athletic match, and before 2006, I could not watch those pay-per-views due to my household TV not having pay-per-view capabilities. By 2006, my family had digital cable and pay-per-view, so my first WWE pay-per-view, which was recorded to watch since I had school the next morning, was WrestleMania 22. WrestleMania 22 featured my favorite wrestler at the time, John Cena, in a WWE Championship defense in the featured match, the last match of WrestleMania 22, and Cena kept that championship in a scenario where Cena was heavily disliked by the fans and booed relentlessly throughout that match. Ironically, Cena was meant to be the heroic wrestler against his rival at the time, a wrestler named Triple H, who was meant to be the villain. The WWE fans booed the hero and cheered the villain in that match, a highly unusual dynamic in professional wrestling at the time. From then on, my wrestling fandom progressed even more, to getting the WWE merchandise, including the wrestler's T-shirts and similar apparel, and using the Internet to understand how professional wrestling works. Professional wrestling often gets scrutiny and the fans get chastised for enjoying WWE due to the perception that the wrestling industry is based on the wrestling being "fake." People who do not watch wrestling with the passion that myself and other fans do, people I have interacted with socially, have questioned why I enjoy that "fake wrestling" so much. People who do not watch or follow WWE, but know the fact that the matches are choreographed and the outcomes are predetermined, meaning that the wrestlers are told they are winning or losing before their matches occur in front of fans, believe that wrestling is "fake" due to how that aspect of how wrestling operates. As a WWE fan, I take exception to the stigma of the wrestlers I enjoy so much engaging in "fake wrestling" for the fans' entertainment, because the WWE wrestlers, and the other wrestlers in the wrestling industry, put their bodies through intense physical pain to entertain the fans. Just because the truth of the predetermined outcomes is a fact, it does not mean that the wrestlers should have a reputation for their chosen jobs being "fake" and therefore, not worth watching. The wrestling that WWE presents is painful to watch sometimes, and very difficult for the wrestlers to execute safely. Injuries happen a lot, and the wrestlers put a lot of effort into developing their skills for their matches and cooperating with their fellow wrestlers to ensure that the injuries are kept to a minimum. I cannot count on ten fingers how often I was teased as a school student for enjoying professional wrestling, both because I had a hyper-focus on it due to being autistic, and for the general stigma of professional wrestling being "fake" in certain opinions. I persisted as a fan of professional wrestling, and I am glad I did because as I aged, more people began respecting my fandom and I was able to enjoy social conversations about WWE. I now enjoy WWE as a fan who understands very fully how wrestling works, and I enjoy it as much as if not more than when I started watching wrestling many years ago. I follow multiple wrestling companies simultaneously, and I will enjoy wrestling as a hobby for as long as wrestling is an active medium for entertainment. Granted, I have been heavily encouraged to broaden my horizons to more hobbies for more social opportunities, since the neurotypical population may find conversing with me to be tiring if I overly elaborate about WWE more than the other person wants to talk about WWE. However, I have more hobbies now. I have progressed in my reciprocal conversation skills to recognize when to discuss wrestling, minimize that habit, and ask my conversational partner about their hobbies. I have been praised by my family and people who know me personally for my growth in that habit, because for a while, my mother would have to interject in my prolonged wrestling chatter to say, "I don't want to talk about wrestling anymore, Mike." I am more aware now of how to navigate conversations these days in the aspect of toning down the wrestling chatter to mainly other WWE fans, while certain people I know engage me in my wrestling chatter even when those people are not big fans themselves because they understand my passion for wrestling. Between Pokemon and WWE, those two special interests have been at the core of my hobbies throughout my life, and in certain instances, WWE has been both an effective diversion on my challenging days and periods, as well as a cathartic hobby to enjoy and release some stimulation on my animated days. As far as my special interest in Pokemon is concerned, I recall having a large book of Pokemon cards that I collected and organized in the book so that when I watched the Pokemon programs, I could be as immersed in the program with my book of cards as possible. I am proud of my WWE fandom and grateful for it because, as a teenager in school, wrestling provided a good distraction from the challenges I had to deal with a lot. While I was mocked for my fandom, I stuck with it because I knew the truth about wrestling, and because it was a confidence booster for the struggles I navigated each day for a long time, in school and in general. Overall, my special interests have been received with both understanding and much criticism due to a lack of understanding in some situations, and the encouragement to find new hobbies. Nonetheless, I stick to my wrestling because there are a lot of days when a WWE match is helpful for decompression and gives me some mental relief from stress, anxiety, and overall autistic life challenges. I love my special interests because I like myself for who I am. If a person, namely a neurotypical, wanted to engage in a conversation but is not into professional wrestling as much as I am, a good way to connect is to understand that while WWE is my passionate hobby, I have other interests that I can discuss (e.g. sitcoms, the paranormal, certain documentaries about people in entertainment). People often think that all I want to discuss is wrestling, because that is the first thing I bring up; however, upon talking to me in a more lengthy manner, people will realize that my conversation can expand into more than just my special interest. If a neurotypical is interacting with an autistic person, and the autistic person's special interest is overly discussed, a kind way to modify that habit is for the neurotypical to simply say, as I was told, "I understand that you like your hobby a lot, and I enjoy talking to you, you seem like an awesome person to talk to, but I would appreciate it if we could change the subject now please." That is all that is needed to make the autistic person aware of that habit, and while I had that same sentence said to me more harshly, depending on the person, there is a kind way to let the autistic person know that without making the autistic person feel bad or inadequate to interact with. It is all about the golden social rule: be nice, and try not to be too critical of the autistic community for that habit because it is not the autistic person's intention to sound that self-centered, that is how autistic people are naturally inclined to talk due to being on the autism spectrum. If the habit of special interests in conversation is addressed and modified in a kind and constructive way, I guarantee that many autistic people will be receptive and learn from that, from personal experience.
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Introduction One of the major aspects of living on the autism spectrum is that autistic people become intensely hyper-fixated on one or two hobbies or interests, which are referred to in clinical terms as specialized areas of interest or restricted interests. These restricted interests become such an intense focus for individuals on the autism spectrum that autistic people often dominate most conversations with others on their hyper-fixated interests, which is interpreted as either self-focused or self-centered and thereby unappealing in social situations. To gauge understanding and knowledge of the special interests of the autism community, I developed a survey consisting of six, multiple-choice questions about the special interests. I shared it with a combination of people I know and others who saw my survey when I shared it. Upon receiving 26 responses, an acceptable sample size of responses was reached to transition into the investigation of the data. (Click here to see a summary of the results here.) Question 1 The first of six questions within my survey asked, "When a person with autism is talking to you and talks a lot about their special interests, how would you feel about the person with autism not asking about your interests?" My multiple-choice answers to that first question were:
Responses to Question 1 Of those three responses, the majority of the responses went with 53.8% (14 respondents), and leaned toward the response of being understanding of why the autistic person is not asking about your interests. The other 46.2% (12 respondents), of responses leaned toward being supportive of the autistic person and willing to teach them to ask about your interests. There were no responses to that first question that indicated a turn-off toward talking to individuals on the autism spectrum due to their special interest dominating the conversation. Personal Insights on Question 1 Responses That is telling that people understand the special interests of the autism community, and there is also an understanding that people with autism can be taught social skills regarding a two-way conversation. With those responses to that first question in mind, it is encouraging for autism awareness purposes that the special interests and how autistic people hyper-fixate on those special interests do not need to be too detrimental in every social conversation. I find it heartwarming to see those responses because I have special interests, and anyone who knows me is well-aware of my conversations about those interests. Question 2 The second question within my survey asked, "As a person talking to someone with autism, would the person with autism appearing not interested in a back-and-forth conversation be looked at as a turn-off to talking to the person with autism?" My multiple-choice answers to that second question were:
Responses to Question 2 The majority of responses, which were 76.9% (20 respondents), leaned toward no, because it is understood that the autism community needs patience and time to learn. The second-most responses, which were 21.3% (6 respondents), leaned toward potentially, because those skills can be taught and the person with autism may not show it when they have training to show it. The third response to this second question, that yes, the lack of a two-way conversation is a total turn-off, did not receive any respondents. Personal Insights on Question 2 Responses The lack of any responses to that third question is promising for understanding and for the autistic community's future social opportunities. I found it endearing to see that many people understand the time and effort that autistic people need to learn conversation skills because that skill is mainly their most challenging social communication barrier. On the other hand, I understand that certain autistic people may not present their developing communication skills when others know that skill is there. I fall into the category of an autistic person who learned that social skill of two-way conversations throughout my childhood, and for a while, I applied that skill on a selective basis, which was received with both criticism and understanding. What I learned from that habit was that even if you bring up being autistic to friends or anyone, others will expect people on the autism spectrum to show interest if there is a known ability to do so, even if that skill is not as natural to autistic people. I disagree with the notion that autistic people need to show that skill if they know how to from training and practice since it is so unnatural for autistic people to learn it, so to criticize the autistic people for not showing it when they can is unreasonable. I think that the autistic community, due to how living with autism impacts that two-way conversation skill, has the right to engage in and discuss their special interests as much as they want to. While the social skill of having a two-way conversation is important for social relationships, which I understand; however, why fault the autism community for not showing a skill when it is not natural for them in many instances? If a friend is genuinely supportive, that friend would be understanding of that habit and allow the autistic person to be overly elaborate about their special interests, two-way conversation or not. While that conversation would not be precisely a two-way street, that is the autism causing that habit, so giving autistic people a pass for that in social interactions is appropriate. Question 3 The third question within my survey asked, "If the person with autism appeared not interested in a back-and-forth conversation, would you be more or less happy to talk to them if they have a kind and funny personality?" The multiple-choice answers to this third question were:
Responses to Question 3 The majority of responses, which were 84.6% (22 respondents), leaned toward yes, because a kind and funny personality is fun even with social challenges. The other responses, the second-most with 11.5% (3 respondents) were that it depends on the autistic person's motivation to learn that social skill, and just one response went to no, that you need conversation skills with a kind and funny personality. Personal Insights on Question 3 Responses The varied insights to this question are mostly endearing, that an autistic person would be embraced in social situations provided they are kind and funny. I understand and respect the opinions of those who believe that a person either needs conversation skills or the motivation to learn those skills needs to be part of that equation. It is helpful to know that these concepts are mostly understood, and while a lot of social opportunities are predicated on how much autistic people can learn that skill, it is nice knowing that some people are open to talking to autistic people knowing of the existing challenges. Question 4 The fourth question within my survey asked, "Since the special interests for people with autism can be very limited to one or two interests, if they do not show an interest in other hobbies and interests, will that lessen their social friendships even if the person with autism has a kind and funny personality?" The multiple-choice answers to this fourth question were:
Question 4 Responses The responses to this question were very varied, the highest response, which was 61.5% (16 respondents) leaned toward no, that an understanding friend would be accepting of the special interests. The second-most, which was 21.1% (6 respondents) leaned toward potentially, that it depends on the autistic person's humor and interest in other hobbies. The third-most, with the least responses of 15.4% (4 respondents), leaned toward yes, that even if a person is kind and funny, people talk about similar interests. Personal Insights on Question 4 Responses I find the majority of the responses to this question to be endearing because an understanding and accepting friend embracing the special interests aligns with accepting a person with autism as they are. The other responses are understandable since it is a common social practice to bond over similar interests, and a kind and funny personality is more pleasant. As a person on the autism spectrum, I prefer to be as accepting as possible over the special interests, since that is a core aspect of living with autism. Others would prefer more similarities in hobbies than just one or two hobbies to talk about, so both perspectives are respectable. Question 5 The fifth question within my survey asked, "If the person with autism gets better at learning back-and-forth conversations skills and tries to find another hobby or interest, would someone try and be friends and talk to them if they have a kind and funny personality?" The multiple-choice answers to this question were:
Question 5 Responses The majority of responses, which were 69.2% (18 respondents), leaned toward yes, that the autistic person would be more relatable with more hobbies. The second-most responses, which were 19.2% (5 respondents), leaned toward potentially, it depends on the hobby the autistic person is into, and the third-most responses, which were 11.5% (3 respondents) leaned toward no, because it depends on how kind and funny the person with autism is. Personal Insights on Question 5 Responses All of these responses are understandable, with many thinking that an autistic person can broaden their horizons to find new hobbies, special interests and all. I understand how important that the more variety of hobbies, the more friends can be made, so I have tried that myself, to a mixed outcome so far. Question 6 The sixth question within my survey asked, "Are the special interests within the autism spectrum a disadvantage in social friendships?" The multiple-choice answers to that question were:
Question 6 Responses The majority of responses, which were 50% (13 respondents), leaned toward potentially, since certain people are more understanding of the special interests. The second-most responses, which were 46.2% (12 respondents), leaned toward no, that autistic people can find friends with similar special interests, and the third-most responses with one leaned toward yes, that the more hobbies you find, you will find more friends. Personal Insights on Question 6 Responses As an autistic man, I appreciate that certain people are more understanding of special interests, even if the autistic person appears very self-focused in a conversation, I also appreciate that autistic people can bond over their special interests. I respect the opinion that more hobbies equates to more friends, so in the event that an autistic person finds a new hobby, that could lead somewhere for finding a new friend. Conclusion Developing this survey was an effective method to gauge understanding of the special interests of the autism spectrum community. I greatly appreciate the time that the 26 respondents gave to my survey. I hope that, with more understanding and social exposure, more people with autism will find more social relationships with understanding friends, special interests and other interests to enrich their social lives and improve autism awareness in the future. Your browser does not support viewing this document. Click here to download the document. As a young child, my autism was not diagnosed until the age of nine. Therefore, any unexpected behaviors I exhibited were noticed by my family but were not connected to living on the autism spectrum. I would self-stimulate as a toddler to the TV at home when my favorite TV show, "Barney The Dinosaur" was on by arm-flapping, but my mother did not think anything of it then. Following my autism becoming official, then therapy and being aware of my tendencies were more of a priority. As a child going into my preteen years, my mother recalled having to explain to strangers why I was arm-flapping in public. I would also self-stimulate by skipping, as in being so excitable by my thoughts that I skipped in a dancing motion while arm-flapping. My elementary school peers were only informed of my autism in the fifth grade, so any unexpected behaviors I exhibited before fifth grade were reacted to with judgmental facial expressions and derogatory remarks. Upon looking back at my time in elementary school, I noticed that my peers were reacting judgmentally and in a derogatory manner, and I responded by feeling hurt and misjudged. However, due to my lack of self-advocacy skills at the time, as a young and yet-to-be diagnosed child, I did not say anything because I was not sure of how to articulate how hurtful the reactions were to me. Going into junior high school, the verbal abuse escalated and my peers were as unkind as can be. I did have some acquaintances in junior high, one of which was both verbally and physically abusive in one instance, but the majority of my peers at that time were as one would expect junior high school peers to be due to unexpected behaviors. The reactions of my peers in junior high school were harsh, cruel, and demeaning most of the time, to the extent that I dreaded going to junior high school each day. I was mistreated and made to look foolish in many social interactions due to my autism causing a lack of interpreting sarcasm and humor the intended way. That verbal abuse took its toll throughout an entire grade, sixth to seventh, being subjected to the "r" word frequently and meanly by certain peers and being the brunt of a lot of sarcastic jokes at the same time, most of which I did not recognize was being teasing toward me at the time. By the beginning of seventh grade, my self-esteem due to the verbal abuse took its toll to the extent that I considered the worst course of action imaginable. However, I managed to feel enough self-worth to prevent that and, in an early instance of self-advocacy, informed the junior high school guidance counselor and my parents of my thoughts of the worst. Upon my self-advocating, I was switched to a different school system and school, designed for students with severe disabilities and students with anger and behavioral issues. Around this time, outside of school, I had two experiences, one in a public setting and one outside of my home, that reinforced the necessity for me to modify unexpected behaviors. The experience in public was that I developed a habit of imaginative role-playing of myself in TV shows I enjoyed at the time, as well as verbally imitating those characters' voices in my voice, and I would exhibit that behavior in public on occasion. I decided to exhibit the imaginative role-playing of the TV characters' voices, which others would perceive as unexpected, on a public beach my family and I often went to. I distinctly recall one young man, who was a few years younger than me, giving me a judgmental facial expression, which was likely both discomfort and confusion, from my right-hand side, and my mother told me after we left the beach that day of another judgmental reaction of an older person. As my mother sat at our beach towel, trying to gesture to me to stop the unexpected behavior, my mother overheard a teenage lady walking with her friend who happened to notice my unexpected behavior refer to me as "that "r" word boy." After my mother told me that, when my mother and I both knew of my intelligence, it dawned upon me to modify that behavior in public more often. The other experience at home involved the same behavior at the beach, but I exhibited that same behavior in my home backyard at that time. As I arm-flapped and imitated the TV characters I was mentally imagining in my backyard, as my body was shifted away from the main road that my childhood home was adjacent to, I heard the very judgmental and mean-spirited reaction from someone driving by my home. That person shouted a very vulgar word at me that is usually directed at the LBGTQ+ community, a word that begins with an "f." Upon that vulgar "f" word being shouted at me from within my own home by a judgmental and mean stranger, which my mother and younger brother overheard from inside our home due to how vocal that stranger was, I went inside feeling humiliated and ashamed, at which point, my mother was honest with me and said, "That is why we encourage you not to do that in public, Mike." From then on, I made a concerted effort to modify my unexpected behaviors, which was indeed an effort since I was used to those unexpected behaviors from habit. As I entered high school, the teasing continued in certain situations, such as the judgmental facial expressions due to my peers not recognizing the unexpected behaviors, and in a few instances, getting insulted out of miscommunications. In one instance, as a high school freshman, I was in my special education classroom and a classmate was distracting me from a group lesson by being childish. This classmate was two grades ahead of me, so due to being distracted, I did something unexpected and considered by others to be against social expectations and told on my classmate for being distracting to me. Another classmate told the classmate that I told on him for the distracting behavior, at which point, the classmate I told on insulted me with a curse word and asked why I told on him. I did not answer that question, because I knew why I told on him, but because the social expectations are to not tell on your classmates or friends, which I did not recognize due to the autism, I was made fun of through an insulting remark due to my choice. In another instance a few years later, in my junior year of high school, I enjoyed different styles of music, such as disco music. One day in my high school cafeteria, I began thinking of a disco song I enjoy, that song is "He's The Greatest Dancer" by Sister Sledge, and began arm-flapping and pacing in-between two cafeteria tables while singing that disco song. It took a judgmental reaction from an underclassmen who noticed and gave me "that look" to get me to self-regulate the arm-flapping at that moment. Eventually, with enough social skills therapy that my schools afforded me and choosing to modify the unexpected behaviors, I ended up making some friends at the tail end of high school and graduated with my peers. One of the topics that social skills therapy covered was "unexpected behaviors," which I was very familiar with by then. That therapy was helpful to my social progression and maturity and allowed me to learn what I needed to learn to be "accepted" for who I was. There were other miscommunications due to the unexpected behaviors, as well as other attributes related to autism and my personality, but with time, practice, and exposure, I learned some hard lessons and ended up earning some respect from others. I have told how likeable I am when I am "myself." However, I still have a lot of trauma mentally and emotionally from the teasing from the unexpected behaviors as a child and teenager. I have also learned to be more respectful to others, you have to give respect to get it back and earn it, and though I still may encounter a degree of scrutiny as an adult from the unexpected behaviors, I am self-aware now to know where it is okay to exhibit those unexpected behaviors and where behavioral modification is necessary. I am working hard to learn the needed skills for future social opportunities, and I have learned that all I can do is be myself and learn lessons through trial and error. I pride myself on my progress and determination and provided I continue that momentum, I can achieve a lot of good things as an adult due to my progression and learning from my experiences and trauma. While I personally disagree with the behavioral modification in public notion, since I believe that those unexpected behaviors are necessary for people with autism to express who they are and for their functioning comfort, I understand the expectation of modifying the unexpected behaviors and modifying against my personal wishes. I disagree with the notion of people with autism modifying their unexpected behaviors in public for two very integral reasons. The first reason is that expecting people with autism to modify their unexpected behaviors is teaching the people with autism that the community as a whole is not perceived as adequate to socialize with and that people with autism are inferior to the neurotypical population if the unexpected behaviors are noticeable. Those unexpected behaviors are part of the autism spectrum for a cognitive functioning purpose since autism impacts the brain and how those brains process in their own ways, so teaching people with autism that they need to "look like everyone else to fit in" is contradictory to embracing autism as a whole, including the unexpected behaviors. The second reason is that people with autism are not bad people, socially and in general, due to unexpected behaviors. A lot of people with autism are quality people to talk to and be friends with, unexpected behaviors and all, even if the unexpected behaviors appear to look a certain and uncomfortable way to neurotypicals. As a person with autism who lived through the misjudgment and ridicule of his neurotypical peers for most of his childhood, I have received the message of "Change yourself to make more friends and be similar to everyone else" for most of my life. However, I do not want to change who I am, autism and all. I like myself for who I am, and unexpected behaviors are part of who I am due to living on the autism spectrum. I wish my peers from my childhood understood that arm-flapping and all of my other unexpected behaviors were a part of my autism at the time and how I expressed myself due to the autism spectrum. As a result, I wish that my peers from that time would have been more educated, which is not their fault, it was not as educated about in general back then. If there had been more education and understanding at that time, a lot of the misjudgment and ridicule I dealt with could have been avoided and I would not have the traumatic memories to figure out for myself all of these long years later. I am responsible for my own healing, that is known, but it is a shame that that responsibility is there, to begin with, due to how unnecessary those experiences were to live through. I carry that burden each day due to avoidable factors, and that aspect makes the healing process even tougher for me. I am trying each day to heal myself, and through my effort and opportunities now, that healing is getting easier as my life progresses. Hopefully, with more education and understanding, the experiences I lived through in a traumatic fashion will serve as inspiration that if you live through those moments and work at it, you can learn from those moments and do better for yourself afterward. It is still painful to mentally relive my trauma, because of my memory and emotional personality, however, I have chosen the high road from those options and I am persevering to set a good example now. When it comes to living on the autism spectrum, apart from the social communication barriers that make it harder for the autism community to learn, many challenges for people on the autism spectrum arise in the form of unexpected behaviors. Unexpected refers to behaviors that are apart from the established social norms and expectations that the neurotypical population adheres to and understands more innately than the autism community does. One such example of these unexpected behaviors is how rigid people on the autism spectrum can be as far as their preference for a specific routine are concerned. This is the case, particularly in children on the autism spectrum, because children with autism become used to the style of routine that those children want to engage in each time. However, because the social norm calls for adjustments to those routines very often, children with autism can be prone to confusion and subsequent emotional outbursts to convey their frustrations over the modification in their routine. An example of an adjustment I had to accept and live with growing up was my junior high school years and the instances when the bus I took to school would break down and my peers and I had to wait for the bus to be repaired, or for another bus to come and pick us up. That happened a few times, and there was one instance where a bus from a different school picked me up unexpectedly due to scheduling conflicts. As a preteen on the autism spectrum, I felt very uncomfortable with that routine being interrupted and would experience a faster heartbeat, I would feel over-stressed and panicky, and I would process the "racing thoughts" that are common for people who live with autism and anxiety at the same time. I knew I had to adjust to those uncomfortable situations, so I practiced my self-regulation exercises and persevered through those moments with patience and willpower. That concept isn't exclusive to children with autism, adults with autism are susceptible to the same habits and rigidity in routine, and for the adults with autism who exhibit more frequent outbursts, the combination of sudden adjustments and overbearing emotions can be overwhelming for those adults. On top of the changes in routine, children and adults on the autism spectrum do not think or learn the same way as the neurotypical population, as neurotypical children gain experience through observing and then modeling expected social behaviors after those older than them. The autism community learns through being verbalized and instructed on how to learn the expected social behaviors since autism causes the learning process of proper behaviors to be explained through trial and error. For instance, for children with autism, learning to find hobbies that align with their ages takes practice and effort from support by people in the children with autism's lives. It may take a delayed amount of time for a child on the autism spectrum to progress from enjoying a television show designed for young children to hobbies that a teenager would be interested in. This could result in barriers to developing friendships and conversations with neurotypical peers who find the person with autism to be too immature for their age. People with autism often have an interest in their hobbies, often called a specialized area of interest and restricted interests since those on the autism spectrum often show a lack of interest in other potential hobbies, to the extent that their special interests become so appealing that the people on the autism spectrum do not consider reciprocating in the hobbies of others. Since I was nine years old, my specialized area of interest has been professional wrestling. Before I progressed with reciprocating in a conversation, any conversation I engaged in involved my fandom of professional wrestling, to the extent that my family sometimes had to say, "Mike, can we change the topic now please." I have experienced social situations in which people just meeting me have asked why I watch wrestling so much, or in one instance, if wrestling "is all you do?" In those situations, I reply that yes, wrestling is a lot of what I do as a hobby, but I have other interests as well, such as sitcoms, biographies and documentaries, and music. With the music, I listen to the same songs over and over again, since my interests in music are restricted to what I prefer, and the documentaries I enjoy mainly revolve around wrestling and my favorite wrestlers. Before my specialized area of interest was professional wrestling, that special interest for me was Pokemon. From around age five to nine years old, I watched Pokemon shows and movies, and collected Pokemon training cards featuring the animated creatures with their special powers that they fought each other with. My special interest in Pokemon as a young child, upon reflection, is very heartwarming in the aspect that the creator of Pokemon is also on the autism spectrum. The creator of Pokemon is a man named Satoshi Tajiri, and his special interest derived from living with autism was insects growing up. Since Tajiri's autism allowed him to focus intensively on insects, he developed the concept of Pokemon, which is now a very well-regarded franchise spanning movies, TV series, and video games. Considering that Pokemon was started in 1996, nearly 30 years ago now, Tajiri's special interest served him very well that way. That is not to suggest that Tajiri did not or does not deal with the challenges that autism creates, such as social communication and over-stimulation, however, with support and learning what works for Tajiri, Tajiri's autism has segued into a successful endeavor and worldwide acclaim due to Pokemon. The restricted interests aspect of the autism spectrum could include adults as well, and thus, forming friendships with others becomes harder to achieve since the social expectation calls for conversations and reciprocity to be an implied part of developing relationships. Certain people with autism can learn to find other hobbies to improve social opportunities, but a good amount of the autism community struggles with that throughout their lives. Another aspect of autism and unexpected behaviors that would benefit from increased understanding and awareness, especially for adults with autism, is the emotional side. There are beliefs that people with autism do not possess any type of emotion, but to disabuse that belief, people with autism possess a powerful ability to emote, which often works against the expected social behaviors. Many people with autism, especially those who exhibit more pervasive sides of being on the spectrum, get emotional very rapidly and aggressively in certain environments and scenarios. Due to this emotional irregularity and lack of skills to self-regulate until it is taught to them, people with autism experience episodes of intense frustration, and in some cases, unintended physicality toward others in what is often referred to as "meltdowns." These "meltdowns" are caused by the people with autism processing so much stress within their brains due to a change in routine or an experience happening that they do not like, that the people with autism react against social expectation with a temper tantrum. Children typically have temper tantrums, and for teenagers and adults with autism, these emotional "meltdowns" manifest in a similar behavior. These outbursts can occur in people with autism who are capable of self-awareness and who are intelligent as well, so the presentation of these "meltdowns" makes it appear as if the teenagers and adults are less mature than they are on their better days. Fortunately, there are supports and therapies designed to address these "meltdowns," however, it takes practice and time for people with autism to mature through those moments. Another unexpected behavior is referred to as self-stimulation, or "stimming." When people with autism are intensely processing their thoughts, their reaction is to engage in their "stimming" behaviors that to neurotypicals, appear odd and uncomfortable much of the time, Examples of the self-stimulating behaviors of people with autism include hand movements (i.e. arm-flapping), rocking their bodies back and forth, pacing in circular movements, repeating words and phrases (the speech term for that repetition is called echolalia), humming, and covering their ears in loud environments. The arm-flapping form of "stimming" is especially important to understand because arm-flapping is very common for people with autism, and the people with autism are subjected to a lot of verbal and emotional torment from their neurotypical peers due to a lack of understanding of why people with autism arm-flap to begin with. As someone who arm-flapped in public for most of my childhood, I dealt with those judgmental and mean-spirited reactions from peers and teachers in school and in public in general. There is a belief that arm-flapping makes people with autism look unintelligent when in reality, a lot of people with autism who arm-flap, including me, are intelligent and feel hurt when neurotypicals jump to the conclusion of, "That guy is flapping their arms, don't talk to him, he is weird." That phrase of reaction to the arm-flapping is one I dealt with a lot growing up, and as a result, I have learned, against my desire, to self-control the "stimming" in public. Fortunately, there are ways to support the autism community in learning to adjust to social expectations, such as by explaining what those social expectations are and strategies to make those adjustments more feasible and comfortable for people with autism to understand and accept. As far as approaching people with autism with questions about their unexpected behaviors, from personal experience, I highly encourage the neurotypical population, particularly parents whose children might notice a person with autism engaging in self-stimulation, to tell their child that the person they are seeing is likely living with a condition called autism that is causing their brain to work differently and the behavior the child is seeing is the person with autism reacting to their brain working differently. I also recommend that a parent elaborate to their child in that scenario that the person with autism will be okay after their brain relaxes and that the behavior will stop once the person with autism calms down. The parent could also tell their child that it does not need to be uncomfortable for the child and that the behavior is widespread for people with autism. If the child hears that from their parent, it could deescalate potential concerns and unnecessary misjudgment between the autism and neurotypical communities. One strategy could include a clear and verbalized explanation of how someone else might react to a particular unexpected behavior and a substitute choice of accepted behavior to appear less uncomfortable to others. Since the autism community can learn from experience at a delayed pace, a strong and consistent support system can make a big difference in the person with autism's progress and development while understanding why the people with autism exhibit unexpected behaviors and supporting them unconditionally through modifying those behaviors. If both of those notions can be achieved, it will pay off for people with autism to be more well-rounded throughout their lives and afford them more opportunities for life and social happiness. References: https://www.verywellhealth.com/age-inappropriate-interests-and-behaviors-in-autism-5190904 https://www.verywellhealth.com/what-is-stimming-in-autism-260034 https://www.stepaheadaba.com/blog/satoshi-tajiri-autism |
AuthorA member of the team and now sharing his lived experience with ASD, Michael J. Westwood is the Lead Blogger at Anvaya Feats! Archives
October 2024
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